On Thursday 16th April we had our regular Alex’s Wish trustee meeting. A number of topics were covered including; how charities are adapting to these unusual times and should Charities furlough staff when they are currently finding that many of their usual fund raising income streams have had to stop. 

Emma Hallam (Alex’s mum) does a fantastic job of keeping the heart beating within the charity. However, Emma would be the first to say the success of the charity is also down to the phenomenal support they receive from local businesses and also from her wonderful team, Zoe and Heidi who help her with all of the administrative and back office support as well as developing new ways for the Charity to engage and fund raise in the community. 

At our virtual trustee meeting Emma spoke passionately about continuing to find new ways to raise funds and prepare to ‘hit the ground running’ once this current situation eases but was struggling to do this without her team behind her. 

To show our continued dedication and support to Alex’s Wish and Emma, Janine Edwards Wealth Management has agreed to sponsor the cost of next month’s wages for Zoe and Heidi. This will enable all 3 very key people to continue to work for the charity next month, and to continue to build the fund raising efforts to help with clinical trials and raising awareness.

If you would like to learn more about Alex’s Wish and their journey so far, please click here.

Emma Hallam, founder of Alex’s Wish spoke about the support shown by Janine, “We were blown away by Janine’s offer to support the team during May so that we can carrying on with our vital work especially around our new virtual events and also look to adapt our fundraising strategy in light of the current situation. Duchenne will still be here long after Coronavirus, so it’s vital that we continue our work to ensure that as soon as we can get moving again we are in a good position to be able to fund medical research and clinical trials. Our focus remains steadfast to bring about effective treatments and ultimately a cure for all boys living with Duchenne. We would like to thank Janine and her team for the continued support they give to us and for supporting us during this incredibly difficult time.“ 

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